Saturday, December 5, 2009

How We Did It

Hi everyone! First, let me apologize for taking so long to share this information with you. I think that Joe's recovery took a little bit more out of me than I initially realized. As soon as he recovered enough to work, he shipped off to the city to work on a TV show that he does every season. He had a few scary physical setbacks during the shoot, and only now that he is home am I beginning to truly relax.

But I feel a tremendous responsibility to share our experience with others - particularly the way that we dealt with billing issues. So many of you played a part in helping us pull through - and I am happy to say that the financial problem appears to be mainly behind us, which is nothing short of a miracle. We have you - our friends, family and friends-of-friends-and family to thank for that.

Joe and I also owe a tremendous debt to our good friend Trevor Houser, who had to raise money in order to have a tumor surgically removed from his brain several years ago. Trevor fully recovered from his ordeal, and remembering how he'd reached out, and asked for donations made it somehow OK for us to do the same.

Trevor also came to visit right after Joe was released from the hospital and opened my eyes to the way that medical bills are negotiated in this country (more on that later). What's more, members of his family made extremely generous donations to Joe's medical fund. They were/are amazing examples of people paying it forward - something that I have vowed to do myself. The following play-by-play of what I did to negotiate our bills is my first stab at doing so.


Many of you know other people who are suffocating under a mountain of medical debt. If any part of what Joe and I did can help them, I hope that you'll forward them our story.

1. WE APPLIED FOR MEDICAID: Joe and I did not qualify. However - it's definitely worth a shot, because (at least in NY) they only look at the month you are in. So if you've had a bad month you might actually qualify. In our case, Joe's tiny unemployment check alone was too much for us to be considered.

2. I VISITED THE UNCOMPENSATED CARE OFFICE IN THE HOSPITAL: We live in a poor area, where tons of people have problems paying their medical bills so this was a standard conversation. In a wealthier area, you might have to fish a bit harder. If there is no such program at the hospital/doctor's office you are dealing with, I suggest you jump ahead to # 3.
One of the gnarly parts of medical care in this country is that the billing people were calling me three or four times a day while Joe was still in ICU. They actually would come visit him while he was delirious and try to talk money with him. I think he told them to F off though, and since he looked like Keith Richards on a bad day at the time, it packed a powerful punch, and they backed off.

When I met with them, I just tried to be polite (failing miserably at times I'm sure). My thinking was that they deal with people at their worst all day every day, so yelling and crying was probably not going to make me stand out in their minds. I was just frank with them from the gate saying that we had no money and so we were going to have to figure out a way to work something out. To be honest, I was more worried about them discharging Joe way too early because they knew we were broke (happens all the time), than I was about how we'd pay the bills.

They explained the financial guidelines for qualifying for uncompensated care - and right away I could tell that we did not qualify. Between the two of us, we just made too much, according to the last year we had filed a Federal Tax return.
Even though we'd already been disqualified verbally and was told the application required a copy of that tax return, I decided to put together an application based on the last six months alone, which had been hideous for us financially. The woman I delivered it to, told me in no uncertain terms that this would probably not get us anywhere. But I insisted it be submitted, "just in case." Here is that initial letter in case it can help anyone draft a similar one. I sent copies of all supporting documents along with it.

I followed up on my application several times, just to make sure it had been passed along, and everything appeared to be in order. However, the person who needed to review it and make a decision would not do so for a month or so. So we waited.

Soon afterward, Trevor visited. While here, he explained that hospitals have very low negotiated rates with Medicaid (which I knew), and also very low negotiated rates with health insurance companies (which for some reason had not occurred to me). Therefore, they try to "make good" with charges to out of pocket patients. For example, for one item we might be billed $3,000 per day, while Medicaid would pay $200 for the same service and Blue Cross/ Blue Shield might pay $225.

Knowing this information emboldened me tremendously. Because I thought - hospitals and doctors accept these low-ball payments hundreds of times a day - why not make our own low-ball offer? Now keep in mind - we owed not only the hospital, we owed like 6 different specialists, plus countless labs, etc., and all needed to be negotiated separately.


3. I DECIDED TO CREATE LOW BALL OFFERS: I knew that if I made uninformed low ball offers it would be too easy to dismiss me outright. I wanted to base my offers on something real. I'm always like this when it comes to negotiations. I have like zero ability to bulls#*@. So I have to come from a place of authority if I want to firmly stand my ground. I decided to offer everyone what Medicaid reimburses, since Medicaid is the lowest of the low ballers. That required a ton of research.

4. I DID A TON OF RESEARCH: Here is where to find the Provider Manuals that let you know what Medicaid reimburses doctors and hospitals for a given procedure (this link is for NY only, you will need to find similar information on your own state's Medicaid site). Warning: it is mind numbingly difficult to decipher the difference between certain procedures - but it's super necessary. It took me weeks to come up with the numbers that I did. If the hospital or doctor that billed you happened to put the billing code of the procedure on your bill, that will really speed your process. A few doctors offices that did not print the billing codes on the bill were gracious/naive enough to cough them up when I called in and gave a very vague/squirrely explanation (I suck at sneaky) but others (smartly) refused to give me any information. The reason this matters is that there may be five procedures that appear to have the same name listed in a row in the fee schedule. Three of them might get reimbursed $40, while one gets $400, and another $4. So you kinda need to figure out which one you had.
I know - daunting - but if I can do it ANYONE can do it. Listen, I don't even know Joe's phone number. Seriously - that's my level of sucking at numbers. So you can do this.

5. I SUBMITTED THE OFFERS: here is a sample of the letter and the accompanying chart that I sent the hospital. Here is a sample letter that I sent one of the doctors (note: I sent similar letters, all with different amounts to all of Joe's health care providers).

You'll see that I was inconsistent about blacking out all of the $ figures - on one hand, I wanted to be discrete - on the other, I really don't care if it can help people negotiate this themselves.

6. I STARTED HEARING BACK: Much to my shock - many of the doctor's billing offices called right away and accepted my low ball offers outright. I had not anticipated that, but I was thrilled. Because we had raised nearly $20,000 from donations, I was able to pay each doctor who agreed to the negotiated rates immediately.

7. I CHECKED IN WITH THE HOSPITAL A MILLION TIMES: Now that I'd sent them an offer, I wanted the hospital to know that my low ball offer trumped my application for a discount - assuming that my offer (around $18 thou) would be lower than any discounted rate they might come up with.

8. WE HEARD BACK FROM THE HOSPITAL: In a turn of events that no one cold have predicted, the hospital had approved our application for Uncompensated Care, and ruled that we qualified for a 40% discount. In a classic case of medical billing math (which is impossible to follow and may well have been crafted by meth users after a seven day bender) the $40% discount brought our $50,000+ bill down to $14,000. Lower than my low ball offer.
I have no idea how they came up with these figures - and I remained suspicious and nervous about them until the day that I went into the hospital and paid the entire bill. Phew!

9. I SENT FOLLOW UP LETTERS: to the two doctors who had not responded to my offers: Here is a sample follow up letter (scroll to page 2 for the follow up portion). You might note that I exaggerated the hospital bill amount slightly (it was actually closer to 50 than 60), Hey, I was going for drama. One office quickly agreed to the low ball offer, the other had a billing clerk call and say that they did not do "any charity stuff." I asked to speak to the Office Manager, to make my request directly to him/her. My plan was to go up the ladder until I heard, "no," from the physician himself before considering any bill a lost cause. As soon as I spoke to the Office Manager, he agreed to my low ball offer

So in NO CASE did anyone counter offer or barter back and forth with me - and in NO CASE did I get a flat out no (OK, a flat out no that I listened to).


As I mentioned at the beginning of this epic post - Joe has recently returned home and is with me in Hudson. We are trying to return to life as normal (snow just began falling!). Just last week, Joe went to his first appointment with Lyme specialist Doctor Bock at the Rhinebeck Health Center. The appointment was crazy expensive but it's so important that Joe's ongoing care be overseen by someone who really knows what he's doing. My point is - this whole situation is not going to get wrapped up in a tidy little bow at the end. Financing health care costs will continue to be an issue - but nowhere along the lines of where we were. We are not in any danger of losing our house, or declaring bankruptcy - which is completely amazing. A few thousand dollars here and there doesn't scare me anymore - because in a few short months we were able to deal with (and close out) $60,000 worth of medical bills.

There is so much more that I could say about this - but I'll spare you another million pages. We are grateful that we live in Hudson and are surrounded by such an awesome, supportive community. Hudson, I love, love,love you.

We are grateful that Joe was treated at Columbia Memorial Hospital - a hospital that no one seemed to have anything good to say about. The level of compassion and respect that the nurses and doctors showed us there was unmatched by any medical experience I have ever had and that includes top hospitals like Cedars Sinai in LA. What's more, had we been in NYC when Joe got sick, there is no doubt that the bills would have been double or triple. Columbia Memorial we love you.


To everyone who chipped in, there are no words. You changed our lives and we promise to do the same for others moving forward, whenever and wherever possible.
xxx
Halie and Joe.

Tuesday, September 15, 2009

UPDATE FROM HALLIE

An update from Hallie:
Hi everyone! I realize that if we haven't talked to you recently, you might be a bit out of the loop. So here's a quick update to bring everyone up to speed. But before we forget - thanks for everything - and WE LOVE YOU!

The Most Important Thing:
The biggest news: Joe's health has improved so much that he was able to return to work this week. And although his energy is far from 100%, he's a completely different person from that guy in the hospital bed just a short time ago. It's pretty amazing - and we feel very lucky.

What We've Already Accomplished:

On the fundraising front - you'll be happy to hear that we've already raised $18,500! And that's before selling a single ebay item! We honestly can not believe how generous people have been - especially in these less-than-flush financial times.

What We Are Still Dealing With:

Joe's hospital bills alone came to roughly $50,000, and on top of those, there are many different physician and lab bills to contend with. However, after doing extensive research on line item reimbursement from Medicaid, we came up with drastically reduced financial offers for each separate bill, which we put in writing and mailed out. So far, we've only heard back from one MD who accepted our offer with no haggling:) We'd always planned on negotiating, but we owe a huge thanks to our friend Trevor Houser who gave us the idea of researching the amount that Medicaid pays for each service. Trevor, who HAS insurance, is still paying off the operation that successfully removed a tumor from his brain several years ago. If any of you are currently dealing with medical debt of your own and would like to see my calculations, or the offers that I presented to docs/hosp - I will gladly supply anything that might help.

That's all for now, we promise to let you know how the rest plays out.
xxo
Hallie.

ps: Here's my seller's profile on eBay - you should be able to browse all the items we're auctioning off here. We are adding items all week. Happy shopping!

Wednesday, August 5, 2009

Welcome...

Dear Friends,

As some of you know, on July 22nd, Joe Moore was admitted to ICU at Columbia Memorial Hospital in Hudson, NY due to what doctors have since diagnosed as Lyme Disease. Among his many symptoms; Joe was weak, incoherent and had a recurring fever of 105. He was also racked with pain. In fact, he recoiled from touch of any kind, and it was clear that all tactile stimulation hurt him.

The ER doctors who first treated him said they had never seen a young man so sick.

Luckily, after days of IV antibiotics, Joe's mind cleared, and he was moved out of ICU. Even better, a week and a half after being admitted, Joe was strong enough to be released from the hospital completely.

Needless to say, it has been an extremely trying time for the entire family. We deeply appreciate the prayers and kind thoughts we have received from afar, they undoubtedly had a hand in helping Joe begin to heal.

And now, we are asking for your help again.

As full time freelancers, Hallie and Joe do not have medical insurance. Joe's medical treatment has already been very expensive and his road to complete recovery will be long. The final tally has yet to come in, and hospital bills are particularly baffling as there is no comprehensive total. Every doctor, test, lab - even some sections of the hospital bill separately. We do know that the basic hospital bill which covers Joe's stay is $36,000. In addition, for the next three weeks (at least), Joe will go to Columbia Memorial daily, to intravenously receive the high dose of antibiotics necessary to fight off a recurrence, at a cost of $800 per day.


If you would like to help, this site is here to help make it simple and easy,

Thank you!

Way to Help # 1 - Donate Money

The donation button on the right hand side of the page makes donating funds, simple and easy. We know that times are tough economically for many of you, so it's important that you know that every little bit helps. Even single dollar donations will help chip away at the mountain of bills. You may donate using a credit card or a paypal linked bank account. Paypal is a safe and secure site, so you don't have to worry about sending money in this manner.
Regardless of whether or not you are able to give, thank you in advance for your care and concern.

Way to Help #2 - Donate To Our eBay Auction

If you’d love to help, but don’t have the dough - why not donate something to our upcoming Ebay auction?

"When I thought about how to help my sister deal with the landslide of bills she will undeniably be up against, I thought of several silent auction benefits I had attended in the past. But since our friends and family are so spread out, it makes more sense for us to do an online auction." Aaron Goodman.

So,we have begun accepting items for an Ebay auction in Joe's name. If you would like to help, simply pack and ship your item to:

Joe and Hallie Moore
48 Worth Avenue
Hudson NY 12534

If time allows, please take a digital photo and note the measurements of your item before you pack it up. Then, email the photos and measurements to either Aaron or Hallie (see the email links on the right hand side of blog homepage) along with a description of the item you are donating.

If you do not have time, we will gladly do these things for you. But if you do them in advance, we will be able to simply forward the package to the winning bidder.

Feel free to browse Ebay to see what items tend to do well.
We are looking for any of the following items for this auction:
  • Artwork
  • Collectibles of any kind
  • New Clothing
  • Vintage designer clothing and accessories,
  • New Skin/Hair Products (Make-Up, Face Lotion, Fancy Shampoo, Styling Tools)
  • Gift Certificates for Services (Hair Cuts/Color, Exercise Classes, Massages etc.)
  • Any high glamor or celebrity related items like Movie Premiere Tickets, Concert Tickets, Walk-On Acting Roles, Airplane Miles, or any item formerly owned by a celebrity (if it can be authenticated)
  • Anything cool you don't use but think might help raise a dollar or two
Please email Aaron or Hallie (see links at right) with any questions.

Way to Help # 3 Donate Lots of Money

OK, we're only kind of kidding.
If you have a sizable sum to donate but are concerned about receiving an appropriate tax deduction, please contact a family member. We will of course, be happy to work something out with the help of our tax attorney.
UPDATE: AFTER MANY MANY CALLS TO OUR TAX ATTORNEY, WE ARE SAD TO SAY THAT WE ACTUALLY CAN NOT OFFER A DEDUCTION AFTER ALL :( WE ARE SORRY THAT WE SPOKE TOO SOON.
Our tax attorney said that there is only one way to get around it, which is to ask a foundation (for example, a Lyme disease foundation) to accept the donation on our behalf, and get them to agree to make Joe their cause. This sounds terribly complicated. But if you have any ideas for us, please share. We'd love to hear them.

Way to Help # 4 - Spread the Word

Please share this blog and all of its contents with any and all of your friends and networks (facebook-myspace-twitter etc). Social networking is a powerful tool. Let's use it for good, shall we?